Advocacy
Current
Positions
Metastatic Breast Cancer Alliance - Co-Chair, Patient/Advocate Advisory Group (PAAG)
Living Beyond Breast Cancer – Hear My Voice Advocate & HMV 2019 Program Mentor
Susan G. Komen - MBC Patient Advisory Committee - Member
Komen Advocates In Science - Member
Ohio Partners of Cancer Control (ODH) – Member and Project Leader
Stefanie Speilman Breast Cancer Scientific Patient Advisory Committee - Member
American Association of Cancer Research - Member
Department of Defense: Congressionally Directed Medical Research Programs’ (CDMRP), Breast Cancer Research Program (BCRP) - Consumer Advocate
Ohio MBC Day of Action (Annual) - Training Coordinator and Event Partner
Health Union – AdvancedBreastCancer.net Contributing Writer
Awards
First Recipient and Award Dedicated in Name - Tori Geib Courage in Action Award - Oct 23, 2019 - Komen Columbus (Ohio MBC Day of Action)
Proclamation Recipient (On Behalf of Komen Columbus) - Race for the Cure (Video begin at :50 min) May 13, 2019 (Columbus City Council, OH)
Proclamation Recipient – Metastatic Breast Cancer Action Weeks – September 18, 2018 – State of Ohio (Proclaimed by Governor John Kasich and Lt. Governor Mary Taylor)
Proclamation Recipient – Metastatic Breast Cancer Action Weeks – September 18, 2018 – Franklin County Commissioners (Franklin County, Ohio) (First Recipient on the Video Link)
Proclamation Recipient (Along with Cancer Support Community) – Breast Cancer Awareness Month – October 10, 2017 – Franklin County Commissioners (Franklin County, Ohio) (10:24 on the Video Link)
Advocacy
Trainings
Previous
Positions
Komen Columbus 2019 Race for the Cure - Honorary Chair
More For MBC (Eli Lilly) – MBC Patient Consultant and MBC Advocacy Ambassador
Ohio Metsquerade – Chair and Founder of the Ohio Metsquerade Gala
OSU Practitioner MBC Clinical Trial/PICORI Grant Proposal - Patient Consultant
TheUnderbelly.org – Social Networking, Press, and Media Director; Contributing Writer
Cancer Support Community – Columbus – Patient Advocate
Cancer Support Community – Group Founder and Leader for Young Adults Peer Support Group
Legislative
Introduction of Pre Exisiting Condition Protection Bill - Patient Advocate - October 23, 2019
Ohio MBC Day of Action; Ohio Statehouse – Training Coordinator and Event Partner (October 23, 2019)
Komen Advocacy Summit - Patient Advocate / Keynote Speaker (May 1-3, 2019)
Ohio MBC Day of Action; Ohio Statehouse – Training Coordinator and Event Partner (September 26, 2018)
Franklin County Commissioners - Patient Advocate (First on the Video Link) (September 18, 2018)
Ohio Senate Finance Committee Cancer Caucus – Patient Advocate (April 10, 2018)
Franklin County Commissioners - Patient Advocate (10:24 on the Video Link) (October 10, 2017)
Komen Ohio Legislative Advocacy Training (Training Leader) – October 23, 2019
Scientist<->Survivor Program - American Association for Cancer Research: Completed April 2019
Komen Ohio Legislative Advocacy Training – March 27, 2019
Hear My Voice – Living Beyond Breast Cancer: Completed October 2017
Media & Public Speaking
Articles
&
Blogs
** Original Post Listed, Syndication of articles not reported
Columbus Dispatch - Komen Columbus Race more inclusive to terminal cancer patients this year; Web and Print (May 17, 2019)
Columbus Dispatch - The Pink Paper; Print Only; (May 2019)
The James - Cancer Patient Calls for Less ‘Battle Language’ and More Focus on Palliative Care; Web Only; (May 9, 2019)
Columbus CEO Magazine - Komen Columbus Race chair for 2019 has terminal breast cancer, but isn’t giving up – and neither is her doctor; Web and Print; May Issue (May 1, 2019)
The Washington Post - A rising trend in cancer care targets physical, existential threats patients confront; Web & Print (May 6, 2019)
Health.com - 6 Ways to Thrive After an MBC Diagnosis (April 22, 2019)
Health.com - Doctors Kept Dismissing My Back Pain—Until I Was Finally Diagnosed With Terminal Cancer (April 8, 2019)
AdvancedBreastCancer.net – The Loan That Keeps On Taking (March 1, 2019)
AdvancedBreastCancer.net – Living Like An Outlier (February 1, 2019)
All Recipes Magazine – Editorial “Cook to Watch” Oct/ Nov Issue; Print (October 9, 2018)
The Bellefontaine Examiner – Pounding The Pavement (October 18, 2017)
TheUnderbelly.org- Featured (December 12, 2016)
TheUnderbelly.org – October Instagram Takeover – October 10, 2017
TheUnderbelly.org – MBC Spotlight (November 14, 2016)
TheUnderbelly.org – Hungry Bellies Recipe Series
TheUnderbelly.org – Multiple Blogs and Reviews
TV, Video
&
Radio
ABC6 (Columbus News) - May 20, 2019 - Living with cancer at young age, Komen chair hopes to inspire other patients
NBC4 (Columbus News) - May 18, 2019 Warrior Express helps breast cancer patients, survivors complete Race for the Cure
NBC4 (Columbus News) - May 17, 2019 - Honorary chair for Koman Race for the Cure talks about her battle with metastatic breast cancer
Ohio Statehouse Newsroom (NBC) - May 17, 2019 - Technical error causes scare for breast cancer patient, OH Dept. of Medicaid apologizes
Boxer Show (WCOL Radio) - May 17, 2019 - Radio Interview About Metastatic Breast Cancer and Race for the Cure
Daytime Columbus (ABC) - May 10, 2019 - Komen Columbus Race for the Cure: Meet this Year's Honorary Chair
Good Day Columbus (NBC4) – March 1, 2019 – “Komen Columbus season kicks off with Ribbons and Rosé “
WPKO (Peak of Ohio News) – January 23, 2019 - Local woman named honorary chair for Columbus Race for the Cure
NBC 4 (Columbus News) – January 9, 2019 - Registration open for 2019 race for the cure
Eli Lilly More For MBC Digital Campaign Filming – October 13, 2018 – AKT Studios (NYC)
GMA Day – October 11, 2018 - How to do the 'Thriver' yoga routine for metastatic breast cancer awareness
Good Morning America – October 11, 2018 - Lilly is raising awareness about metastatic breast cancer
Good Day Columbus – October 5, 2018 - October is Breast Cancer Awareness Month
NBC 4 (Columbus News) – September 26, 2018 - Advocates push lawmakers to help make life better for cancer survivors
Living Beyond Breast Cancer – June 20, 2018 - Twitter Chat: Single and Ready to Mingle: Dating and Breast Cancer
Franklin County Commissioners Meeting – October 10, 2017 - Public Speaking (Time on Video: 10:29)
Hope Hollow – Columbus, Ohio – Patient and Programing Advocacy Video (2017)
Our American Stories – June 29, 2017 - One Amazing 30-Year-Old vs. Metastatic Breast Cancer And Bureaucracies
Peak of Ohio – December 7, 2016 - Local woman fights terminal illness while raising awareness
Public
Speaking
Living Well With Advanced Breast Cancer Conference - October 12, 2019 - Keynote Speaker
Great Lakes Breast Cancer Research Symposium - May 4, 2019 - Round Table Speaker
Komen Advocacy Summit - May 3, 2019 - Keynote Speaker
MetUp – April 6, 2019 - Die In - Keynote Speaker
Komen NE Ohio: Metastatic Breast Cancer Conference – March 9, 2019 – Patient Panel Speaker
Komen Columbus: Ribbons and Rose – March 1, 2019 – Keynote Speaker
Ohio Senate and House of Representatives: Cancer Caucus – September 26, 2018 - Ohio MBC Day of Action – Presenting Speaker
Ohio Metsquerade – September 22, 2018 – Event Chair and Coordinator
Living Well with Advanced Breast Cancer (OSU James Care) - September 15, 2018 – Advocacy Break Out Session - Guest Speaker
Hope Hollow – June 24, 2018 - “A Garden Party” – Guest Speaker
Upcoming
Events
OCTOBER 14, 2019 - CBS 10TV
OCTOBER 14, 2019 - #MBCBCChat - Twitter @SusanGKomen
OCTOBER 23, 2019 - Ohio MBC Day Of Action
NOVEMBER 8, 2019 - Eastern TN MBC Conference
DECEMBER 2019 - San Antonio Breast Cancer Symposium
TBA - Living with MBC Video Release - Dr Joe Explains